Still work to be done. That delay in diagnosis means the path of that individual's life was derailed, sometimes dramatically and requiring lots of "clean-up" later...
Consistent with my experience and peer’s data. We often quote time to diagnosis as 8-15 years, mine sits at ~ 13 years. Always interested in how symptom onset is determined. The work @ConsortiumSleep is doing should help improve researcher access to data
We have to do better!! Educating mental health professionals & PCP’s is a great start. Sometimes tired & depressed isn’t just tired & depressed!
RT @SleepAndSports: "mean and median diagnostic delay was 9.7±11.5 and 5.3 (interquartile range: 1.7-13.2 years) years, respectively" @matt…
"mean and median diagnostic delay was 9.7±11.5 and 5.3 (interquartile range: 1.7-13.2 years) years, respectively" @matthorsnell @CernoSleep #SleepPeeps https://t.co/9I6fKU9K1E
Idling for Decades: A European Study on Risk Factors Associated with the Delay Before a Narcolepsy Diagnosis https://t.co/LWtwfCcAhU
Idling for Decades: A European Study on Risk Factors Associated with the Delay Before a Narcolepsy Diagnosis https://t.co/HJF8IS21mJ