Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease

Overview of attention for article published in Journal of Multidisciplinary Healthcare, September 2016

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So far, Dimensions has found 15 publications that cite this research output.

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Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis

Article in BMC Nursing (January 2024)

Assessment of Parental Needs and Quality of Life in Children with a Rare Neuromuscular Disease (Pompe Disease): A Quantitative–Qualitative Study

Article in Behavioral Sciences (November 2023)

Versorgung von Menschen mit Seltenen Erkrankungen: Empfehlungen für eine gelungene intersektorale Zusammenarbeit

Article in Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz (June 2023)