| Title |
What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?
|
|---|---|
| Published in |
Patient preference and adherence, February 2013
|
| DOI | 10.2147/ppa.s40783 |
| Pubmed ID | |
| Authors |
Anne Hogden, David Greenfield, Peter Nugus, Matthew C Kiernan |
| Abstract |
Family carers of patients with amyotrophic lateral sclerosis (ALS) are presumed to have frequent involvement in decision-making for symptom management and quality of life. To better understand and improve decision-making, we investigated the range and extent of carer participation in decision-making. By focusing on the perspectives of ALS support carers, the study aimed to explore carer participation in decision-making, to identify carer roles, and determine the facilitators and barriers to carer participation in decision-making for ALS multidisciplinary care. |
X Demographics
The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 2 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Practitioners (doctors, other healthcare professionals) | 1 | 50% |
| Science communicators (journalists, bloggers, editors) | 1 | 50% |
Mendeley readers
The data shown below were compiled from readership statistics for 115 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Switzerland | 1 | <1% |
| Canada | 1 | <1% |
| Unknown | 113 | 98% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 15 | 13% |
| Researcher | 14 | 12% |
| Student > Bachelor | 13 | 11% |
| Student > Ph. D. Student | 11 | 10% |
| Student > Doctoral Student | 9 | 8% |
| Other | 22 | 19% |
| Unknown | 31 | 27% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 26 | 23% |
| Nursing and Health Professions | 19 | 17% |
| Social Sciences | 14 | 12% |
| Psychology | 7 | 6% |
| Agricultural and Biological Sciences | 5 | 4% |
| Other | 12 | 10% |
| Unknown | 32 | 28% |
Attention Score in Context
This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 03 October 2019.
All research outputs
#7,118,925
of 25,584,565 outputs
Outputs from Patient preference and adherence
#473
of 1,733 outputs
Outputs of similar age
#70,377
of 292,111 outputs
Outputs of similar age from Patient preference and adherence
#5
of 17 outputs
Altmetric has tracked 25,584,565 research outputs across all sources so far. This one has received more attention than most of these and is in the 71st percentile.
So far Altmetric has tracked 1,733 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.6. This one has gotten more attention than average, scoring higher than 72% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 292,111 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 75% of its contemporaries.
We're also able to compare this research output to 17 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 76% of its contemporaries.