| Title |
Living with cystic fibrosis – a qualitative study of a life coaching intervention
|
|---|---|
| Published in |
Patient preference and adherence, April 2018
|
| DOI | 10.2147/ppa.s159306 |
| Pubmed ID | |
| Authors |
Karin Bæk Knudsen, Kirsten Arntz Boisen, Terese Lea Katzenstein, Laust Hvas Mortensen, Tacjana Pressler, Marianne Skov, Mary Jarden |
| Abstract |
Cystic fibrosis (CF) is a chronic, life-shortening disease with a significant treatment burden. To support young adults with CF in their everyday life, we previously conducted a life coaching feasibility trial (published elsewhere). The aim of the current study was to explore how life coaching was experienced by study participants within the context of their lives with CF. A qualitative study using individual interviews. Respondents (n=14) were recruited from the intervention group after participation in life coaching. Data were analyzed from a phenomenologic-hermeneutical perspective, inspired by Ricoeur's theory. Periodic exacerbations of CF led to worry about disease progression, and interrupted the respondents' ability to fulfill daily life roles satisfactory. The treatment burden demanded self-discipline and this was sometimes at the expense of social life or career. The young adults rarely spoke to others about their situation; therefore, they valued opening up to a professional coach about life and concerns. We identified three themes: 1) living an unpredictable life; 2) the conflict between freedom and the constraints of illness; and 3) the value of telling one's story. In relation to all three themes, coaching promoted reflection over life situations, reframed thoughts, and facilitated finding new ways to manage everyday life. Life coaching is an intervention that is valued for those who feel challenged by their CF disease. Coaching programs should be designed to include the participants, when they feel a need for coaching and are open for change. Screening parameters to identify persons who will most likely benefit from life coaching are needed. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Australia | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Science communicators (journalists, bloggers, editors) | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 55 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 55 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 10 | 18% |
| Student > Master | 7 | 13% |
| Student > Doctoral Student | 5 | 9% |
| Student > Ph. D. Student | 5 | 9% |
| Other | 3 | 5% |
| Other | 6 | 11% |
| Unknown | 19 | 35% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 12 | 22% |
| Medicine and Dentistry | 7 | 13% |
| Nursing and Health Professions | 6 | 11% |
| Business, Management and Accounting | 3 | 5% |
| Social Sciences | 3 | 5% |
| Other | 3 | 5% |
| Unknown | 21 | 38% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 19 April 2018.
All research outputs
#19,951,180
of 25,382,440 outputs
Outputs from Patient preference and adherence
#1,294
of 1,757 outputs
Outputs of similar age
#252,686
of 343,807 outputs
Outputs of similar age from Patient preference and adherence
#33
of 39 outputs
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