Title |
Developing a handheld record for patients with cystic fibrosis
|
---|---|
Published in |
Patient related outcome measures, August 2015
|
DOI | 10.2147/prom.s86298 |
Pubmed ID | |
Authors |
Omendra Narayan, Siobhan Davies, Carly Tibbins, JH Martyn Rees, Warren Lenney, Francis J Gilchrist |
Abstract |
Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 33% |
Unknown | 2 | 67% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 2 | 67% |
Members of the public | 1 | 33% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 8% |
Unknown | 12 | 92% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 5 | 38% |
Researcher | 4 | 31% |
Professor | 1 | 8% |
Lecturer | 1 | 8% |
Student > Bachelor | 1 | 8% |
Other | 1 | 8% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 5 | 38% |
Nursing and Health Professions | 3 | 23% |
Computer Science | 1 | 8% |
Agricultural and Biological Sciences | 1 | 8% |
Social Sciences | 1 | 8% |
Other | 1 | 8% |
Unknown | 1 | 8% |